We thank all those who support our wards! Here we report on children whose medical needs are already closed with your help.
Child Diagnosis:
intestinal insufficiency of moderate severity, malabsorption syndrome, short bowel syndrome
Aim of the collected funds:
acquisition of an infusion pump and a course of parenteral nutrition
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Child Diagnosis:
structural focal epilepsy, pharmacoresistant form, epileptic encephalopathy against the background of organic damage to the central nervous system (presumably as a result of herpes encephalitis).
Aim of the collected funds:
operation at the Bethel Epilepsy Center at the Mara Clinic (Germany)
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Child Diagnosis:
bilateral atresia of the external auditory canal, microtia of the external ear on the left
Aim of the collected funds:
operation to form the external auditory canal on the right (second stage of hearing restoration) at the International Center for the Treatment of Atresia and Microtia (California, USA)
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Child Diagnosis:
congenital (congenital) myasthenic syndrome caused by a compound-heterozygous mutation in the CHAT gene, involving the muscles of the extremities
Aim of the collected funds:
purchase of Firdaps for 6 months
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Child Diagnosis:
focal cortical dysplasia (Lenox-Gastaut symptom complex)
Aim of the collected funds:
examination and surgical treatment at the Bethel Epilepsy Center at the Mara Clinic (Germany)
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Child Diagnosis:
bilateral atresia of the external auditory canal, microtia of the external ear on the left
Aim of the collected funds:
operation to form the external auditory canal on the right (the first stage of hearing restoration) at the International Center for the Treatment of Atresia and Microtia (California, USA)
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Child Diagnosis:
structural localized epilepsy
Aim of the collected funds:
check-up and treatment in the German clinic (Epilepsy Centre Bethel)
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